By Vasiliki-Rafaela Vakouftsi from Greece.
“But you don’t look sick”. How many times I have heard this? Maybe I don’t look sick to you but I am sick and my daily life is far from what you may think.
I tried to captures in pictures my daily routine as a chronic patient and I’m going to share them with you.
First of all, let me tell you some things about me. My name is Vasiliki-Rafaela, I’m a musician and I have Crohn’s Disease, Adrenal Insufficiency, Psoriasis and Psoriatic Arthritis. I have written a book about my journey with Crohn’s and a book about my life with Adrenal Insufficiency. Also, I really like traveling and I really miss it with the pandemic.
Now let’s start with the hospital visits…
...the hospital stays and therapies…
...the hospital stays and therapies…
...take the pills, medicines and supplements…
...and maybe today is the day of the week for the injection for Crohn’s…
...or maybe I need the emergency shot for Adrenal Insufficiency…
And now it’s time for a walk.. Don’t forget to carry the pills with me...
...and of course my medical ID…
Back at home again.. Really exhausted...Let’s check the e-mails and read a book before going to sleep
That’s a little idea of how my daily life is. But, you’re right. So before saying “You don’t look sick” think of what is behind the image and what you cannot see…