by Lexi Hanson (Missouri, U.S.A.)
A graphic from Lexi, titled “The Heart of the IBD Community: What it Means to Belong.” On the left side is a photo of Lexi, a young Black woman with short curly hair, clear glasses, a bright pink checkered shirt/pants, a camera, and a wide smile. She stands in front of the ocean with her arms outstretched. On the right side is text sharing Lexi’s experience with CCYAN, included below.
Being a part of CCYAN this year alongside my other fellows has been a true honour. Being able to speak openly and be heard without judgment was beautiful. I learned about what having IBD means to them and how experiences can be shared even when we live across the globe from each other.
It taught me that although we can be physically alone when experiencing the physical pain and challenges that this disease brings, we can be find community and solace with others who truly get it.
To me, what it means to truly belong is...
To have an experience that can show up differently on medical records, but ultimately we struggle the same. Being able to discuss that made me feel community.
To be surrounded by people who get it—people who understand the hospital bracelets, the bathroom anxiety, the fatigue that hits out of nowhere, and the strength it takes to show up anyway. It’s a space where you don’t have to explain your symptoms, apologize for canceling plans, or pretend you’re feeling fine when you’re not.
To feel seen in the stories of others, supported in your hardest moments, and celebrated in your victories—no matter how small. It’s knowing that your journey, your resilience, and even your vulnerability have a place. It’s connection without judgment, understanding without question, and the comfort of a community that reminds you: you’re not alone, and you never have to be.