Mahdwer Ayalew, one of our CCYAN Fellows for this year, shows her favorite drinks and explains the scientific evidence for their positive health effects. Read more on the effects of turmeric, black pepper, and green tea in the articles linked below:
A Day in the Research Lab: IBD and the Microbiome
Our CCYAN 2023 Fellow, Karen Mancera, is a second-year PhD candidate in biomedical engineering at the University of Florida. Her specialty focuses on IBD and the gut microbiome--check out this video for sneak peek on her daily research work and a look inside of a medical research laboratory.
A Day in the Life of IBD: Colonoscopy
Content warning: colonoscopy, needles, medical procedures
Our CCYAN Fellow, Mahder Ayalew Bezabih, shares her experience of her first colonoscopy in seven years.
Crohn's and Colitis Young Adults Network Journey
Dr. Fasika, brilliant mother, doctor, and 2022 Fellow for the Crohn's and Colitis Young Adults Network (CCYAN), shares her thoughts on her fellowship journey.
Thoughts On Pregnancy and IBD
In this video, 2022 Crohn's and Colitis Young Adults Network Fellow, Fasika, shares her experience with pregnancy and childbirth while having IBD. You can view the articles that Fasika has written about on Postpartum Anxiety & IBD here https://www.ccyanetwork.org/news/post... and one on Pregnancy & IBD here https://www.ccyanetwork.org/news/preg...
How to Support Your IBD Friends
CCYAN fellow, Maalvika, interviews her good friend, Mitanshi, on how to support your friends through their IBD diagnosis and journey and gives great advice for fostering great relationships with your chronically ill friends.
Learn How to Make Indian Chai Tea
By: Maalvika Bhuvansunder
Disclaimer: This tea may not suit everyone, as each person with IBD has different dietary restrictions and what works for one may not work for the other
The recipe and instructions for this delicious drink are below:
Indian Chai -serves two
Ingredients:
Tea powder: 1 teaspoon*
Ginger: one tiny piece
Cardamom: 2 pods
Clove: 2 pieces
Cinnamon: 1/4th of a stick or a small piece
Water: one teacup
Lactose free milk: one teacup* (Video recipe uses @almarai lactosefree milk)
Sugar: 2 teaspoons*
Method:
In a tea pot, add in one cup of water
Crush together ginger, cardamom, clove, cinnamon and add them to the water
Boil the above on low flame for 3-5 mins
Once the color of the water gets a slight tint, add in 1 ½ teaspoon of tea powder
After a minute, add in one teacup of milk
Add in 2 teaspoons of sugar and let it boil on high flame
When the tea comes to a boil switch, off the stove and strain the tea.
Serve with your favorite snacks or biscuits.
*Use decaf black tea if caffeine is an issue(ex: Lipton decaf black tea bags)
*You can replace the milk with any plant based ones or have the tea black if preferred
*You can add in any other spices such as saffron or mint, based on ones liking
*Sugar can be skipped
The recipe can easily be doubled or reduced. Add equal quantities of water and milk
To the Girl Staring Back at Me
Natasha Kacharia, was diagnosed with ulcerative colitis her junior year of high school. In this video, she shares how she failed to recognize herself in the mirror and eventually learns to appreciate her new identity with her diagnosis.
Photo by Lukáš Dlutko from Pexels
This article is sponsored by Connecting to Cure.
Connecting to Cure Crohn’s and Colitis is a grassroots, volunteer organization that brings together the IBD community with a focus on caregivers and families. Connecting to Cure Crohn’s & Colitis provides community and support for those coping with these chronic illnesses, while raising awareness and funds for research as well.
It's Stelara Injection Day
Follow along with Savannah on her Stelara injection day! Learn about what she does to make the day easier on herself.
Photo by Karolina Grabowska from Pexels.
Moving into Stanford Except I'm Chronically Ill and Stuff
Hi! My name is Nathalie, one of the CCYAN fellows of 2021!
Spend some time with me while I talk about what it’s like to move when you have a chronic illness! If you want to find out more information about me or CCYAN, be sure to check out @ccyanetwork on social media.
This content is sponsored by Lyfebulb.
Lyfebulb is a patient empowerment platform, which centers around improving the lives of those impacted by chronic disease.
This video was created by Nathalie Garcia from the U.S.
Photo by Ricardo Esquivel from Pexels.
Paint With Me: Finding a Coping Skill for IBD
Hi! My name is Nathalie, one of the CCYAN fellows of 2021!
TW: mental health
Today I talk about how I found what coping skill worked best for me to manage my IBD and my mental health. If you want to find out more information about me or CCYAN, be sure to check out https://www.ccyanetwork.org and @ccyanetwork on social media.
If you or a loved one with IBD is struggling with mental health and needs immediate help, please cal 911, text START to 747-741 or call 1-800-273 TALK (8255).
Remember, you are not alone.
This video is sponsored by Lyfebulb.
Lyfebulb is a patient empowerment platform, which centers around improving the lives of those impacted by chronic disease.
Paint With Me: Managing IBD and Depression
TW: depression
Hi! My name is Nathalie, one of the CCYAN fellows of 2021! Today I talk about my experiences dealing with IBD and depression.
“I think sometimes when you’re dealing with depression, it never feels like anyone can understand you. It’s kind of like you’re screaming at the world for just anyone to listen to you, and somehow, no one can hear you. And no one can see you, because of your disability and the fact that it’s invisible. But I’m here to remind you that I can hear you, and so can other people in our community.”
If you or a loved one with IBD is struggling with mental health and needs immediate help, please call 911, text START to 747-741 or call 1-800-273 TALK (8255). Remember, you are not alone.
This video is sponsored by Lyfebulb.
Lyfebulb is a patient empowerment platform, which centers around improving the lives of those impacted by chronic disease.
My IBD Story
Get ready with CCYAN fellow Nathalie Garcia as she shares her IBD diagnosis story and how Crohn’s disease affected her at such an early age.
Growing up, Nathalie’s brother almost lost his life due to ulcerative colitis following a misdiagnosis from lack of medical testing. A few years later, Nathalie began experiencing signs of IBD herself when she was just 15 years old. Because of her family history, Nathalie was tested early for IBD only for the results to come out as inconclusive. At 16, however, she collapsed during her high school cross-country race and was finally diagnosed with Crohn’s disease.
Nathalie dives into her diagnosis journey in her latest video and shares the ups, the downs, and all the relatable moments in between.
This video is sponsored by Lyfebulb.
Lyfebulb is a patient empowerment platform, which centers around improving the lives of those impacted by chronic disease.
Come to My Infusion Appointment with Me!
Follow along as I take you through my Remicade appointment during a pandemic. I talk through the IV process, emotional effects of Remicade and my experience with it.
IBD Symptoms Outside the Gut
“For years before I was diagnosed with IBD, I experienced the symptoms described in this video. It would have been helpful to know at a young age that these were all related to one, bigger issue!”
Accommodations in School and in the Workplace
One of the most intimidating topics after getting diagnosed with IBD is the concept of accommodations. That is why Samantha created this video to try to help answer some of the questions that may come up when starting to look for accommodations - both in school and the workplace!
IBD Week in the Life During Covid-19 | Vlog
Catch a glimpse into the life of an IBD patient during a pandemic as Lucy navigates a week of lab work, prescriptions, virtual doctor appointments, and insurance quandaries.
5 Ways to Support Those With IBD
Whether its your friend, family member, peer or co-worker - here are 5 ways you can show support to those living with IBD.
Why I Stopped Focusing on A CURE
Why I stopped using cure-centered language and how it helped me cope with my chronic illness.
How I Got Involved in the IBD Community
When I was first diagnosed when I was 15, I didn't know anyone else with IBD. Now I have friends all over the world who have IBD that I can rely on for support! Check out how I went from an embarrassed teenager to a loud and proud advocate in the community I've grown to love.