Things I Learned After 1 Year Diagnosed With Crohn’s Disease
Advice for the chronically ill and their loved ones.
By Giana Formica from OH, USA
A year ago today, I was diagnosed with Crohn’s disease and my life was forever changed. My body has gone through a lot in a short period of time. I’ve had four hospital stays, an ostomy bag for three months, two surgeries, and one colonoscopy. I’ve learned so much but this is just the beginning. I’m growing and learning everyday new ways to cope and accept the fact that I’m chronically ill and my life looks a little different than most. I’m proud of all that I’ve accomplished this last year but I am still learning and working on these skills and accepting these changes to my life.
Progress isn’t necessarily linear.
The unfortunate reality of having a chronic illness means you are going to have bad days. It’s hard to measure your progress when focusing on the negative.
How to change an ostomy bag.
Really I should say I’ve learned what an ostomy bag is. I have so much respect for my friends with lifelong ostomies.
If you think you need to use a mobility aid, just get one.
When beginning to search for my own this was the best piece of advice I found. They are made to help people enjoy their lives and not be in pain. Why wouldn’t you want one?
Art is healing.
Being able to have a creative outlet while growing with the life changes chronic illness brings, makes a world of a difference.
It’s okay not to be resilient and strong all the time.
As a disabled person, we all hear the phrase “you’re so brave” or “they’re so strong” thrown around by able-bodied folks when referring to our conditions. We deserve to be able to break down and be frustrated about our experiences because sometimes it is just plain exhausting.
Community building is incredibly important.
Having a support system of disabled friends and able-bodied allies makes such a difference in personally healing.
Be the representation you needed.
Everyone’s experience being chronically ill is unique. It’s up to you to speak out and use your voice to advocate for what’s important to you.
You are a whole person, beyond your chronic illness.
Medicine is very scientific. It’s important to remember the holistic aspect of your being beyond your illness or disability.
Featured cover photo by Miguel Á. Padriñán from Pexels.