Advocating for IBD

by Lexi Hanson (Missouri, U.S.A.)

A beige and black graphic titled “Advocating for IBD.” An arrow is in the middle of the page, pointing right. Text included below.

Why is IBD Important to Advocate for?

  • IBD (including Crohn’s disease and ulcerative colitis) affects millions worldwide and can severely impair quality of life.

  • Often diagnosed in teens and young adults, IBD can affect people during the most critical stages of personal and professional development.

  • Because IBD involves bowel symptoms, people often avoid talking about it, leading to shame and isolation.

Lasting impacts from IBD

  • High rates of anxiety and depression are associated with IBD due to its unpredictable nature and social limitations.

  • IBD leads to significant healthcare costs, lost productivity, and financial strain for individuals. 

  • Access to proper diagnosis, treatment, and ongoing care is not equal across regions and populations. 

How can we Advocate?

  • Share personal stories and facts through social media, blogs, podcasts, and public events (especially during awareness months).

  • Advocate for policies that ensure better healthcare access, insurance coverage, and medical leave protections for those with chronic illnesses. 

  • Form or join local or online support groups to connect patients, caregivers, and allies.