The Pathway to Body Acceptance as a Chronically Ill Person

By Amy Weider

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When I was in fourth grade, I was going through the symptoms of my upcoming Crohn’s diagnosis. I was young and did not understand or have the language to explain the pain my body was feeling. While Crohn’s and IBD are invisible illnesses, i.e. one does not look “sick” to a normal passer byer, my constant puking and diarrhea made me lose a significant amount of weight. As a 4th grader this was a bit alarming to my folks, but the general reaction made by my peers and adults around me was to comment on my weight loss and uplift me for it. “You look so much better now” I remember this statement so vividly from a boy in my fourth grade class. “It’s super cool that you finally decided to lose some weight,” someone said to my ten year old body. I was ecstatic to hear this. When you are growing up Femme in a world that encourages you to hate your body and only allows you to idolize those who occupy an able body that wears a size two, it is fitting that this weight loss seemed like a success to me as opposed to a signal that I was chronically ill. I could not differentiate between healthy and skinny, they meant the same to me.

“I could not differentiate between healthy and skinny, they meant the same to me.”

I internalized so many of these comments and the general societal note that any extra amount of weight made me less than. When I was put on prednisone it induced me to gain all the weight back plus more and get “moon face” as well as stunt my growth. As a formally skinny person, I was embarrassed to have this body and it forced me to endure much body dysmorphia because of the quick changes. My mind didn't understand how this was supposedly a healthier version of myself.

When I think back to this time in my life I want to give my ten year old self a big hug. Healing with the body that I inhabit is treating it with the love and respect that I so desperately needed when I was actively a sick young person. My body size continues to change today even in remission. Body dysmorphia and trauma still occupy much of my life. When I was a size two I remember constantly thinking I was fat, now a size ten I do all I can to waste no more days worrying about my size. Acknowledging sizeism and fatphobia allows me to deconstruct and actively tear down these underlooked systems of oppression that taught me to hate myself and other bodies. Today, I know that my body does not even have to be healthy, skinny or pretty for me to love it. I love the way my body takes up space. I accept that my body is sick while simultaneously being an amazing vessel that holds all my thoughts and dreams. Learning radical self love was revolutionary for me and so many others.

“Today, I know that my body does not even have to be healthy, skinny or pretty for me to love it. I love the way my body takes up space.”

People gain and lose weight for SO MANY different reasons, folks with chronic illnesses deal with a fluctuation of weight due to their medicine, hospital visits or general “sick” stress. Even deeper, any kind of body trauma can induce weight loss or gain. Sure, if you are blindly assuming someone is unhealthy because of their weight, it allows you to think very highly of yourself but when we comment on one specific part of the body not the whole person, their whole experience and all the symptoms, your comments are worthless. In general, commenting on other folks’ bodies is a baseless way to assert a dominance on others.

All bodies deserve love! The body positive movement is currently challenging the notion that one specific body is healthy and beautiful and all the other ones must conform. Folks like LIZZO, Megan Jayne Crabbe (@bodyposipanda), Iskra Lawrence, Sonya Renee Taylor (The Body Is Not An Apology) are pushing back everyday by freely and openly loving themselves as a political agenda and are encouraging others to do so as well. Folks with chronic illnesses and disabilities are at the center of this movement and are helping bring nuance and love to it.

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